Speak up for HR1187 Today!

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For those of us living with the daily challenges of a chronic gastrointestinal (GI) disorder (feel free to read my own personal journey here) or if you know someone who is, your voice is needed to create change! Today is IFFGD‘s Virtual Advocacy Day that was put into place to be our inspiration to make Congress aware of the importance of HR1187.

Here is the list IFFGD has provided to us to help share why we need to raise awareness for functional gastrointestinal and motility disorders (FGIMDs) and my added inputs for each……

  • Because FGIMDs are the most common digestive problems in the general population, affecting 1 in 4 people in the US.

Why are there not stricter labels and restrictions on our food? Why are there so many new GI conditions? This is not a fad this is an epidemic and it’s on the rise.

  • Because many are characterized by chronic and debilitating symptoms, often requiring a lifetime of care.

For me, a total colectomy was the answer to my colonic inertia and tortuous dead large intestine. But I still live every day controlled on how my body decides to react to things now that I have no large intestine, no gallbladder and developed adhesions and complications from my surgery.

  • Because some can be life-threatening, robbing those affected of their lives and their family members and friends of their loved ones.

Try living with the worst stomach ache that you have ever had and be made to live and function like a regular person. To have it happen unpredictably to you and control everything you do in life. Having to have your spouse turn into your caregiver and miss work to take care of you. Not being sure if you can make plans with others or travel because it all depends on how you feel. And when you do make those plans have to bring a purse full of medications to control unpredictable symptoms and your heating pad for overnight stays just to be comfortable. And let’s not forget how this effects those suffering with finding employment to not only stay financially stable but to pay all your medical expenses. Not everyone can be approved for disability, not all employers are understanding and there are not enough remote work from home opportunities for those of us who actually need them (I know cause I am still actively looking).

  • Because they remain poorly understood, and those affected are often misdiagnosed or mistreated.

I was misdiagnosed for 8 years and had every test imaginable. It was not until I traveled to Mayo Clinic in Minnesota and saw their specialist that I was able to finally get answers and the proper surgery I needed. Doctors here were telling me I had IBS and acid reflux and the whole time my large intestine was literally dieing inside of me. I was also told by one surgeon that I needed a colostomy bag to diagnosis what was wrong with me. Luckily I stuck to my gut (pun intended) and didn’t trust what these doctors were telling me. I literally had to go online and research my symptoms and talk to others who were also suffering to get answers. At many times after doing so I would have to ask doctors to perform tests on me that they didn’t even think to try.

  • Because no cures and few effective treatments exist

During my misdiagnosed years the doctors were trying to pump me with fiber and other medications that was actually making my symptoms worse. Many of us suffering can not get approved for medical marijuana for pain, nausea and to help with appetite because our conditions are not cookie cutter and on a list. Yet we can be prescribed narcotics/opiates that help with the pain but actually cause other organs in our body to fail, our symptoms to get worse, and are contributing to the rise of addiction. On top of all of that, many of us have new conditions (anxiety, depression, other organs issues) caused by the years of not getting treatment that we needed and trying to live and function like everyone else.

For all of these reasons, and more, we are taking a stand for the millions of Americans affected by asking our House Members of Congress to cosponsor The Functional Gastrointestinal and Motility Disorders Research Enhancement Act (HR 1187).

Here are 3 ways you can take action:

  1. Find your House Congressional Representative and send an email (use this sample letter for inspiration).
  2. Call the U.S. Capitol Switchboard at (202) 224-3121 and ask to speak to your Representative’s healthcare staff member.
  3. Find your Representative’s Twitter handle or Facebook profile and share your message on social media with #HR1187.

Working together on Advocacy Day and throughout the year, we carry a clear, impactful message — that research needs to happen NOW! By speaking up, you can help expand critical research, initiate important legislation, and facilitate the development of new treatment options, cures, stricter food labels, disability/job protection, and doctors to be re-educated to stop misdiagnosing! If you share anything today let it be this post!

Stay Spooky & Supportive,
LDG Nicole

CBD: Free Shipping!

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CBD Biocare is celebrating new reduced shipping rates by giving everyone that orders FREE shipping for a limited time! You MUST choose free shipping at check out to get this deal and don’t forget to use my LDGNICOLE coupon code to get 5% off your order as well!

Stay Spooky & Healthy!
LDG Nicole

CBD: Mother’s Day Sale!

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Treat yourself to beauty and pain relief this weekend! You deserve it!

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Stay Spooky!
LDG Nicole

CBD: Save Your Gold! 24 Hour Pain Relief Sale!

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Today’s your lucky day! Get 25% off when you purchase 2 or more CBD pain rubs today only! And that’s not all… purchase directly from me at https://www.cbdbiocare.com/ldgnicole/ and use coupon code LDGNICOLE to get an additional 5% off your order!

CBD Pain Relief Balm

This pain relief rub is my  favorite product of the CBD BioCare line. This stuff brings instant relief to my patellofemoral syndrome knee pain. I even keep a jar of it in my purse so if I am somewhere like my desk at work, a movie theater chair or a long car ride, I have it on hand! When I get aches in my lower back during my dysmenorrhea or from standing too long (have been experiencing this ever since my epidural and/or total colectomy surgery) this stuff is a god sent. Many find it a great natural remedy for their arthritis.. And is great to just have on hand for random aches that occur from overdoing things!

This sale ends tonight! Stock up now and start living pain-free!

🍀🤗  LDG Nicole

Get Your CBD Here!

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I am now an official CBD supplier through CBD Biocare. No dispensary needed for these amazing and legal hemp products. This is not another bandwagon pyramid scheme or gimmick. No makeup, candles, Tupperware, weight loss pills for this chic.This is just me being passionate about helping others without access to medical marijuana so you can live happier and healthier lives NATURALLY. Especially those who live with pain like myself (read my affiliate bio here) and can only get prescriptions for opiates and narcotics (that do more harm than good). The skin care products are just an added plus for those interested in that sort of thing or have skin conditions they would like to see if this will help treat.

CBD BioCare Products

Purchase directly from me at https://www.cbdbiocare.com/ldgnicole/ and use coupon code LDGNICOLE to get 5% off your order. Bundle and save options available. New to CBD? Here are some fun facts to get you familiar…

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Stay Spooky, Happy, Healthy & Pain Free!
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LDG Nicole